Save Our Sons Limited

This charity is currently registered with the ACNC.

  • Public Benevolent Institution
  • Basic Religious Charity
  • Tax deductible (DGR)
  • Financial Report Consolidated

Key Information

Charity Status

Charity reporting is up to date.

Charity Size

L

  • Extra Small (<$50k)
  • Small ($50k-$250k)
  • Medium ($250k-$1m)
  • Large ($1m-$10m)
  • Very Large ($10m-$100m)
  • Extra Large (>$100m)

Revenue $3.3m

Years in Operation

17 Years

Est. 2008

Operating State(s)

No reported operations

Overseas Operations

Not Operating Overseas

Number of Employees

4.9

FTE Employees

10

Volunteers

% Revenue from Govt.

4.1%

Revenue from Govt. ($133k)

Total Expenses

$2.3m

70.9% of Revenue

% Revenue from Donations

20.1%

Revenue from Donations ($654.6k)

Grants for Use in Aus.

$229.5k

10% of Expenses

Grants for Use Outside Aus.

$0.00

0% of Expenses

% Employee Expenses

25.6%

Employee Expenses ($590.5k)

Who they help


Aboriginal Or Tsi
Adults 25 To 65
Adults - 65 And Over
Children 6 To Under 15
Early Childhood - Under 6
People From A CALD Background
People With Chronic Illness
Youth 15 To U25

Other beneficiaries not listed

More Details

Basic Information

ABN

30852969402

ENTITY TYPE

Australian Public Company

Incorporation TYPE

Health Promotion Charity

Other Business Names

Save our Sons Duchenne Foundation

TAX CONCESSION STATUS
  • Endorsement date : 1 July 2010
  • Income Tax Exemption
  • GST Concession
  • FBT Rebate
  • FBT Exemption
DGR Status
  • DGR Item 1
Fundraising Status
  • Conducts fundraising
    Within ACT, NSW, NT, QLD, SA, TAS, VIC, WA
    Licence Number:
    NSW: CFN/20667, QLD: CH3019, SA: CCP4100, TAS: c/11001, VIC: FR0016229, WA: CC22193
Purpose statement

Save Our Sons Duchenne Foundation funded Doctors and nurses in our major children's hospitals to ensure clinical trials come to Australia; we funded PhD candidates to start early research careers into treatment for DMD/BMD. SOSDF also advocated for the HTA recommendations submitted to government and life insurances changes to improve outcomes for those living with DMD/BMD. Our advocacy raises the voice of the Duchenne and Becker communities. We work with the Australian Patience Advocacy Alliance, Rare Voices, the Muscular Dystrophy Associations across Australia and many other groups who support rare conditions. SOSDF successfully advocated to bring clinical trials for Becker patients to Australia. this is a first for the Becker community and we are proud our work encouraged this to happen in Australia. SOSDF have had an amazing Scientific Conference in September 2024, brining Dr and specialists from around the world and parents and adults with DMD together.

FINANCIAL DATA
PEOPLE
PROGRAMS
DOWNLOAD REPORTS
SIMILAR CHARITIES

2024 Financial Data

2024 Revenue Breakdown

Total Revenue $3,255,562$3.3m

2024 Expenses Breakdown

Total Expenses $2,308,796$2.3m

Total Gross Income (incl. $0.00$0 of other income e.g. gains): $3,255,562$3.3m

SAVE OUR SONS LIMITED have a net surplus of $946,766$946.8k

2024 Assets Breakdown

Total Assets $6,871,614 $6.9m

2024 Liabilities Breakdown

Total Liabilities $534,964$535k

SAVE OUR SONS LIMITED have net assets of $6,336,650$6.3m

2024 People

Staff Costs

$590.5k

18.1% of Annual Revenue

Full Time Equivalent Employees

4.93

Average Expense per Employee

$110.7k

Full Time Employees

3

27% of Employees

Part Time Employees

4

36% of Employees

Casual Employees

4

36% of Employees

This organisation is supported by 10 volunteers.

Responsible People

We display the names and titles of the first 16 Responsible people for each charity. If you would like to see the remaining responsible people please visit the ACNC charity register.

Antonella Dolores

Role: Secretary

Miled Akle

Role: Treasurer

Pierre Bouantoun

Role: Deputy Chairperson

Rick Powell

Role: Chairperson

Classifications

2024 Programs

Save Our Sons Limited ran 4 program(s) in 2024

4 operated in Australia

Save Our Sons Duchenne Foundation funded Doctors and nurses in our major children's hospitals to ensure clinical trials come to Australia; we funded PhD candidates to start early research careers into treatment for DMD/BMD. SOSDF also advocated for the HTA recommendations submitted to government and life insurances changes to improve outcomes for those living with DMD/BMD. Our advocacy raises the voice of the Duchenne and Becker communities. We work with the Australian Patience Advocacy Alliance, Rare Voices, the Muscular Dystrophy Associations across Australia and many other groups who support rare conditions. SOSDF successfully advocated to bring clinical trials for Becker patients to Australia. this is a first for the Becker community and we are proud our work encouraged this to happen in Australia. SOSDF have had an amazing Scientific Conference in September 2024, brining Dr and specialists from around the world and parents and adults with DMD together.

Program Details
  Domestic International    
Enhancing Quality of Life Program

Diseases and conditions

Program Beneficiaries: Program Locations: Overseas Operations: Operated Online  
Adults - aged 65 and over Australia NA No
People in rural/regional/remote communities Australia NA No
Children - aged 6 to under 15 Australia NA No
Early childhood - aged under 6 Australia NA No
People with chronic illness (including terminal illness) Australia NA No
Youth - 15 to under 25 Australia NA No
People from a culturally and linguistically diverse background Australia NA No
Adults - aged 25 to under 65 Australia NA No
Aboriginal and Torres Strait Islander people Australia NA No
Families Australia NA No
People with disabilities Australia NA No
Research into Adult Care

Diseases and conditions

Program Beneficiaries: Program Locations: Overseas Operations: Operated Online  
People with chronic illness (including terminal illness) Australia NA No
Youth - 15 to under 25 Australia NA No
Adults - aged 25 to under 65 Australia NA No
People with disabilities Australia NA No
Clinical Trial Capacity Building - Save Our Sons Duchenne Foundation

Health and medical research

Program Beneficiaries: Program Locations: Overseas Operations: Operated Online  
Adults - aged 65 and over Australia NA No
Children - aged 6 to under 15 Australia NA No
Early childhood - aged under 6 Australia NA No
People with chronic illness (including terminal illness) Australia NA No
Youth - 15 to under 25 Australia NA No
Adults - aged 25 to under 65 Australia NA No
Families Australia NA No
People with disabilities Australia NA No
Others Australia NA No
Clinical trial finder website

Children's hospital care

Program Beneficiaries: Program Locations: Overseas Operations: Operated Online  
Children - aged 6 to under 15 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
Early childhood - aged under 6 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
People with chronic illness (including terminal illness) Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
Youth - 15 to under 25 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
Adults - aged 25 to under 65 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
Families Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
People with disabilities Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia NA Yes
Domestic
International
Enhancing Quality of Life Program

Diseases and conditions

Program Beneficiaries:

  • Adults - aged 65 and over
  • People in rural/regional/remote communities
  • Children - aged 6 to under 15
  • Early childhood - aged under 6
  • People with chronic illness (including terminal illness)
  • Youth - 15 to under 25
  • People from a culturally and linguistically diverse background
  • Adults - aged 25 to under 65
  • Aboriginal and Torres Strait Islander people
  • Families
  • People with disabilities

PROGRAM LOCATIONS:

Australia

OVERSEAS OPERATIONS:

NA

Operated Online:

No

Research into Adult Care

Diseases and conditions

Program Beneficiaries:

  • People with chronic illness (including terminal illness)
  • Youth - 15 to under 25
  • Adults - aged 25 to under 65
  • People with disabilities

PROGRAM LOCATIONS:

Australia

OVERSEAS OPERATIONS:

NA

Operated Online:

No

Clinical Trial Capacity Building - Save Our Sons Duchenne Foundation

Health and medical research

Program Beneficiaries:

  • Adults - aged 65 and over
  • Children - aged 6 to under 15
  • Early childhood - aged under 6
  • People with chronic illness (including terminal illness)
  • Youth - 15 to under 25
  • Adults - aged 25 to under 65
  • Families
  • People with disabilities
  • Hospitals / Medical Research Institutes

PROGRAM LOCATIONS:

Australia

OVERSEAS OPERATIONS:

NA

Operated Online:

No

Clinical trial finder website

Children's hospital care

Program Beneficiaries:

  • Children - aged 6 to under 15
  • Early childhood - aged under 6
  • People with chronic illness (including terminal illness)
  • Youth - 15 to under 25
  • Adults - aged 25 to under 65
  • Families
  • People with disabilities

PROGRAM LOCATIONS:

Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145, Australia; Royal Children's Hospital, 50 Flemington Rd, Parkville VIC 3052, Australia; 501 Stanley St, South Brisbane QLD 4101, Australia; 15 Hospital Ave, Nedlands WA 6009, Australia

OVERSEAS OPERATIONS:

NA

Operated Online:

Yes

Show all programs

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Financial Reports
Governing Documents
Annual Information Statements

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